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Genetic data combined with registry data makes it possible to develop measures to prevent diseases and to create more effective treatments.

The large-scale FINRISK population survey of risk factors for chronic, noncommunicable diseases has been used to collect health data on the population every five years since 1972.

FINRISK data are even partly  (faeces samples) stored in the European Genome-phenome Archive EGA already. The Finnish ELIXIR node CSC is developing the Finnish FEGA service. Finnish FEGA is a national service based on EGA. Data, as well as the public metadata, can be uploaded to the FEGA. FEGA is a service for storing and sharing all types of biomedical data consented for research but not for fully public dissemination. In the future, FINRISK data and genomic information should be stored on the CSC’s FEGA service. FEGA allows to store sensitive data in Finland in a way that fulfils all the requirements of the General Data Protection Regulation (GDPR). The metadata will be made internationally available in the central EGA.

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CSC – IT Center for Science

is a non-profit, state-owned company administered by the Ministry of Education and Culture. CSC maintains and develops the state-owned, centralised IT infrastructure.





builds infrastructure in support of the biological sector. It brings together the leading organisations of 21 European countries and the EMBL European Molecular Biology Laboratory to form a common infrastructure for biological information. CSC – IT Center for Science is the Finnish centre within this infrastructure.