THL and Finland’s ELIXIR Node CSC – IT Center for Science were involved in a project called Towards the European Health Data Space (TEHDAS), which included 25 countries and concluded in July 2023. TEHDAS was a collaborative project that conducted preparatory work and provided recommendations to promote the implementation of the EHDS. According to Doupi, the wider utilization of health data imposes new requirements, particularly when it comes to cross-border secondary use.
“The goal of the TEHDAS project was to determine how cross-border/EU-level secondary use of data could be organised and what kind of legislation is needed”, says ays Persephone Doupi, Senior Medical Officer at the Finnish Institute for Health and Welfare (THL).
She works in THL’s Data and Analytics Unit as the coordinator for international secondary use data management projects. The unit promotes the diverse use and interoperability of data resources. One of its tasks is to develop open data interfaces and services.
”What would be the governance model and tasks of data permit authorities, and how could access to data be organised? At the same time, the project involved investigating what kind of information-system architecture and technical solutions would be most suitable, how to ensure data quality and the interoperability of datasets, and what standards are available.”
TEHDAS continues with the TEHDAS-2 project. It includes a work package that addresses secure environments, with the goal of creating sustainable solutions for the secure management of data.
TEHDAS continues with the TEHDAS-2 project. It includes a work package that addresses secure environments, with the goal of creating sustainable solutions for the secure management of data.
“CSC is involved in the development of secure environments. The biggest question concerns the definitions, administrative models and solutions for secure environments. CSC has had a central role from the beginning, especially when considering datasets related to genomics. In Finland, there are no other actors besides CSC that could provide similar expertise in this regard.”
Read more here
ELIXIR is partly funded by the European Commission